Our Journey

Hello and welcome to “Our Lewy Life,” a blog where I share our journey through the lens of a caregiver, loving and supporting my wife, Dona, who lives with Lewy Body Dementia. I’m Craig, and my wife is the love of my life. Our story is one of love, resilience, and finding hope in the face of life’s unexpected turns.

This blog is my way of tagging along on the incredible journey my wife started with her own blog, “My Lewy Life.” She’s the real star here, bravely sharing her life with Lewy Body Dementia. I’m just following in her incredible footsteps, giving you a peek into our world from a caregiver’s angle. I’m here to keep it going, sharing our story with a lot of love, devotion and respect to her for leading the way.

We first crossed paths at work, not once but twice, at different companies. It seems fate had a plan for us long before we realized it. Since then, we’ve been partners in every sense, working hard to raise a family and build a comfortable life with dreams of traveling the world during our retirement.

However, life had other plans. The day of February 10, 2022, we received her probable diagnosis of Lewy Body Dementia, our world shifted. It was a moment of profound shock, yet in the midst of this, we knew one thing for certain – we were meant to make something good out of even the most challenging situations. This blog, “Our Lewy Life,” is a part of that endeavor as a partner blog to my wife’s, “My Lewy Life“.

Here, I won’t be offering medical advice. Instead, this is a space for me to tell our story – the highs, the lows, and everything in between. It’s about our accelerated journey through our bucket list, her brave step into retirement, and our daily life as we navigate this condition together.

My hope is that by sharing our experiences, our story can provide comfort to others walking a similar path and perhaps shed light on what it means to live and love in the presence of Lewy Body Dementia. This blog is my attempt to find and share the silver linings, to embrace each day with love and gratitude, and to support each other through every step of this journey.

I invite you to join us, share with us, and find a bit of comfort in our stories. Welcome to “Our Lewy Life.”